When dementia makes it onto newspaper front pages, it’s a good idea to approach with caution. Miracle cures or bogeyman ‘causes’ of dementia are often reported, but the reality of medical research is complex.
In recent months we’ve also seen several stories questioning US President Donald Trump’s mental fitness. Armchair diagnoses include cognitive decline, narcissistic behaviour disorder and even early-stage dementia. ‘Does Donald Trump have dementia?’ reads one typical headline, followed by close reading of the President’s latest tweets.
If you’re Donald Trump, these stories might comfortably be filed under ‘fake news’. But regardless of how you feel about the President, mixing the medical with the political is a bad idea. In fact, nobody – public figure or not – should have their mental health diagnosed from a distance. Here’s why.
4 reasons NOT to diagnose from afar
1. The diagnosis will probably be wrong
Human behaviours can have many possible causes. This is why we recommend seeking a thorough and professional assessment if you’re worried about your memory. If somebody is showing signs of confusion, for instance, there are lots of reasons why this could be. Infections, changes in medication, disturbed sleep, depression or stress are a few possible factors.
There are several different types of dementia too, all of which are impossible to diagnose reliably without a person’s consent or cooperation. A professional diagnosis will include a personal ‘history’, as well as physical exams, cognitive tests and a scan of the brain if needed. Someone who knows the person well can often attend and provide helpful information, as well as support them through the process. In other words, you need both medical expertise and a person’s direct cooperation.
2. It is unethical
Donald Trump may seem unlike other politicians, but he’s not the first to be challenged on mental health. In 1964, presidential candidate Barry Goldwater was the subject of a magazine article headlined ‘1,189 Psychiatrists say Goldwater is Psychologically Unfit to be President!’ The article hinged on an informal poll of US psychiatrists, none of whom had met the candidate. Goldwater lost the election, but his campaign successfully sued the magazine for defamation.
This landmark case is the reason for the American Psychiatric Association’s Goldwater Rule, which warns psychiatrists in the US against diagnosis from a distance. The rule states:
‘On occasion psychiatrists are asked for an opinion about an individual who is in the light of public attention or who has disclosed information about himself/herself through public media. In such circumstances, a psychiatrist may share with the public his or her expertise about psychiatric issues in general. However, it is unethical for a psychiatrist to offer a professional opinion unless he or she has conducted an examination and has been granted proper authorization for such a statement.’
3. It stigmatises people living with dementia
It’s one thing to dislike the things the President says or does, but to attribute Trump’s behaviours to dementia is both hurtful and unhelpful. This language reinforces the myth that people with dementia are ‘crazy’ or incapable of making sound decisions. It also supports the idea that people living with dementia are unfit for work, which may not be the case.
We want a society in which people with dementia feel understood, valued and able to contribute to their community. But to get there we need to stop making assumptions and recognise the many people living well with dementia.
4. It normalises incorrect language
As with any sensitive medical condition, the language we use around dementia is important.
There’s a long history of mislabeling when it comes to mental health conditions, and casual diagnoses make matters worse. Words like bipolar and OCD, for instance, are often used outside of a medical context. This creates confusion that impacts people with a formal diagnosis.
This is why we must be extra careful when applying the term dementia. People with the condition need a professional diagnosis so they can access the support they need. A weakened understanding of dementia could put people off seeking medical help. If someone does have a diagnosis of dementia, we need to still see the person. We should never use their dementia as a label that comes to define them.